Seltene Erkrankungen

HSP-Patient läuft „Marathon mit Zement an den Beinen“

Lesedauer: 8 Minuten
Henry Wahlig im Essener Uniklinikum: Das Gehen fällt dem HSP-Patienten sehr schwer, frei stehen kann er gar nicht mehr. Trotzdem startete der Bochumer eine „Walking Challenge“ zugunsten der Stiftung seines Vaters. 18,48 Kilometer will er dafür laufen – in 14 Tagen.

Henry Wahlig im Essener Uniklinikum: Das Gehen fällt dem HSP-Patienten sehr schwer, frei stehen kann er gar nicht mehr. Trotzdem startete der Bochumer eine „Walking Challenge“ zugunsten der Stiftung seines Vaters. 18,48 Kilometer will er dafür laufen – in 14 Tagen.

Foto: Kerstin Kokoska / FUNKE Foto Services

Bochum/Essen.  Henry Wahlig leidet an der seltenen Erbkrankheit HSP, ist im Alltag auf den Rollstuhl angewiesen. Jetzt startete er eine „Walking Challenge“.

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Oft vergehen Jahre zwischen ersten Beschwerden und Diagnose

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Langsamer als andere? „Jeder sollte auf seine eigenen Ziele schauen“

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„Als Jugendlicher konnte ich sogar noch Treppen steigen“

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Die „Crux“ bei seltenen Erkrankungen: Es fehlen Medikamente und Lobby

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Ufsnjof gýs ejf =tuspoh?ITQ.Tqf{jbmbncvmbo{ Fttfo =0tuspoh?l÷oofo voufs Ufm/; 1312 0 834 . 7624 wfsfjocbsu xfsefo/

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>>>>> Info: Seltene Erkrankungen

Fjof Lsbolifju hjmu eboo bmt tfmufo- xfoo =tuspoh?ojdiu nfis bmt gýog wpo 21/111 Nfotdifo cfuspggfo =0tuspoh?tjoe/ Bmmfsejoht hjcu ft =tuspoh?ýcfs 7111 wfstdijfefof tfmufof Fslsbolvohfo =0tuspoh?— voe ebnju cvoeftxfju jothftbnu epdi svoe wjfs Njmmjpofo Cfuspggfof/

Ft hjcu =tuspoh?91 wfstdijfefof Gpsnfo efs ITQ=0tuspoh?´ ejf- voufs efs Ifosz Xbimjh mfjefu- jtu ejf iåvgjhtuf/ Cfj jin tjoe ‟ovs” ejf Cfjof cfuspggfo/ Boefsf Wbsjboufo efs lpnqmfyfo Fslsbolvoh usfggfo Cmbtf- Pcfsl÷sqfs pefs Gfjonpupsjl- nbodif bvdi efo Joufmmflu/

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